Sometimes, people respond with this statement when I comment about one of my symptoms choose any of the following :. After all, they can develop over the natural course of aging. Most people do not understand, however, that I used to be very sharp mentally and was a strong athlete and dancer before I was diagnosed. That makes these symptoms much more glaring for me. My late husband always told me my life was ruled by my bladder. I never like to be too far from a bathroom.
I found a smartphone app called Flush that displays public restrooms nearby, and I never leave home without it! I cringe whenever I see a new doctor and have to fill out reams of paperwork.
My handwriting is atrocious; it was the first symptom that sent me to the neurologist. And guess what? I had to fill out a lot of paperwork at his office! Although my typing on a computer is no longer as fast as it used to be, at least I have a spell-checker. E-forms are a greatly appreciated and preferred option. Pneumonia is the leading cause of death in patients with this disease. Still, I fear living with a poor quality of life and loss of my independence more than I fear dying.
Silence speaks it all. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. Thank you for this article. I am 56 single female and I don't look like I have PD - people tell me, and I have felt dis ease about this, and you explain why.
And yes - I worry about the getting sicker and what the future entails. I know it doesn't help in anyway to think that way, but it's the bold truth, and it hangs over me like a black cloud.
I agree the article was on point! Well said! I try to believe that as cruel as this disease can be or will get we must always try to find the positive side of things I never stop hoping perhaps we might be different!
I am also 56 years old at least for a couple of weeks. I am married with three children but it is as if I am alone! Dad you are so slow! Can you move faster! Just to name a few. Not what you would expect from your own family. I'm new to the group and happy to know that I'm not alone.
I don't mean that in a selfish way. Some of these comments come from people with the best of intentions Hi my name is Shaun everyday work skills everyday not so good anymore I fall over about everyday lighthearted everyday so much can't handle it the sun don't work with me much anymore but there are so Manny more.
Hi Shaun, I am so sorry to hear about your struggles. Is there a local PD support group you can join? Anne Marie, thank you for your comments. We are only human, try as I might, my thoughts sometimes drift to my future, but I know I cant stay there too long as it serves no purpose for me.
Its so hard to understand how to get it undertail. I'm wife frights with me everyday enter motor outer motor I'm 39! Then I found this wonderful column! Thank you for validating what I am feeling. I easily overheat. I too am incontinent.
Does anyone get nauseated if they do too much? Sometimes I just feel like I am getting the flu if I overdo it. Thank you so much for being here! Thank you for your comments and kind words Mary. The heat and humidity do a number on me. Sometimes I notice my fatigue is very bad after a workout. I attribute it to using whatever dopamine stores I have whether from meds or if I can still produce during rest was used to get me through the workout.
My neurologist agrees and told me to cut back on my exercise. As it is with PD, some days are better than others. I have found when I get nausea, it is related to timing of meds and eating. I try to drink a lot of water with my meds and inhale peppermint essential oil to get relief from the nausea. Great article. I appreciated the discussion of PD symptoms.
I was diagnosed 5 years ago and am fortunate to have mild symptoms except for fatigue and insomnia. In some ways I have simply accepted that death is coming.
I am grateful that I had 65 pretty healthy years I am now I would like to "get my affairs in order" but find that a lack of energy prohibits getting much done. While I'm physically able to move at a fairly normal pace 2. The line in the article that I especially agree with is: "Still, I fear living with a poor quality of life and loss of my independence more than I fear dying. I would rather die too soon that live to long with a poor quality of life. I have no fear of death. To me death is simply going to sleep and not waking up.
Hi Jim Thanks for your comments. Depression is a symptom of PD and I know I am dealing with that. The sense of hopelessness can be overwhelming at times. I hope you can find joy and peace. Hi Joanne. Thanks for your comment. The progression can be frightening. My worst symptom is fatigue and it is debilitating. Hang in there Oh how brave you are and how awful it is to field and deal with the uninformed or misinformed.
This is because aspiration Pneumonia is caused when food or other material goes down the windpipe, gets stuck there, and causes an infection. If you are looking for vocal cord exercises check out our communication club wellness programs.
In addition, you should talk with your doctor about any difficulty swallowing to find out if you need a formal swallow evaluation test or speech therapy. The answer is no. What can I do about it? PFNCA is a registered c 3. Patients living with PD can take steps to ensure they get quality care from their healthcare team , as well as take good care of themselves. Staying as active as possible with help from an occupational therapist OT who can show you how to modify daily activities, eating a healthy and well-balanced diet, and taking medications as prescribed can all help optimize your health and promote well-being.
Talking with the doctor about any challenges or concerns can also help you brainstorm solutions to problems or help create a plan to address issues. Don't neglect emotional health, as well. Depression and anxiety affect up to half of those living with PD. Mood disorders and changes like these can actually worsen symptoms and affect overall health, so proper treatment is crucial.
Spending time with other people — friends, family members, activity groups — can also help decrease feelings of isolation or loneliness. While living with PD is life-changing, it is not a death sentence. Learning more about the condition, as well as treatment options and how to make adaptations for your lifestyle can be helpful. Every person is different, so talk with the treatment team about any concerns you have. Remember that most people with PD live about as long as their general population peers, and die of the same diseases as the general population — not PD.
By providing your email address, you are agreeing to our privacy policy. We never sell or share your email address. Chris H. Hope you have a great day.
So, it follows that if one strengthens the voice, swallowing issues should not occur, and so lessening the chance of aspiration pneumonia! Parkinson Voice Project does some great work. Take care! Thank you! Finally something positive for those with PD to hear. I preach exercise and staying active to stay ahead of the disease. But nothing is effective without a positive attitude. Thanks so mjuch for weighing in! People need to take this thing seriously Marc Mitnick Moderator.
PD becomes a co-morbidity and the actual cause of death is due to other medical conditions.
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